The aroma of coffee fills the kitchen, the gentle gurgle of the moka pot blending with the soft steps of the cat crossing the room. Lucia pours the water into her cup — a warm touch between her hands, and for a moment everything feels slow and simple, just like every morning.
She sits at the table, sips her coffee, and looks out the window. For many, it’s a morning like any other. But for Lucia, each day carries small precautions and choices shaped by her common variable immunodeficiency. It isn’t always visible, yet it’s a constant presence — one that accompanies every moment of her life.
Each person living with a primary immunodeficiency faces a daily life made of small challenges and brave, life-shaping decisions. Facing them alone would be impossible — luckily, behind every step lies a quiet yet invaluable network of family members, doctors, researchers, and donors who support, accompany, and share the journey.
Home with You – Where Communities Care
was created to tell the story of this invisible network — a tapestry of experiences, expertise, and generosity — where everyone plays a unique and essential role.
was created to tell the story of this invisible network — a tapestry of experiences, expertise, and generosity — where everyone plays a unique and essential role.
This new series explores the ecosystem of care and support surrounding those who live with a rare immune system disorder. It is a true community of people who care, each in their own way. A journey through stories of healing, dedication, and connection — where strength is built step by step, through small gestures and meaningful relationships.
The aroma of coffee fills the kitchen, the gentle gurgle of the moka pot blending with the soft steps of the cat crossing the room. Lucia pours the water into her cup — a warm touch between her hands, and for a moment everything feels slow and simple, just like every morning.
She sits at the table, sips her coffee, and looks out the window. For many, it’s a morning like any other. But for Lucia, each day carries small precautions and choices shaped by her common variable immunodeficiency. It isn’t always visible, yet it’s a constant presence — one that accompanies every moment of her life.
Each person living with a primary immunodeficiency faces a daily life made of small challenges and brave, life-shaping decisions. Facing them alone would be impossible — luckily, behind every step lies a quiet yet invaluable network of family members, doctors, researchers, and donors who support, accompany, and share the journey.
Home with You – Where Communities Care
was created to tell the story of this invisible network — a tapestry of experiences, expertise, and generosity — where everyone plays a unique and essential role.
was created to tell the story of this invisible network — a tapestry of experiences, expertise, and generosity — where everyone plays a unique and essential role.
This new series explores the ecosystem of care and support surrounding those who live with a rare immune system disorder. It is a true community of people who care, each in their own way. A journey through stories of healing, dedication, and connection — where strength is built step by step, through small gestures and meaningful relationships.
CHAPTER 2
Looking Ahead
Every piece of research
begins with a question —
but its gaze is always set forward.
begins with a question —
but its gaze is always set forward.
CHAPTER 4
The Invisible Thread
Choosing to be there.
That’s how solidarity
becomes care.
That’s how solidarity
becomes care.
CHAPTER 4
A Pact of Trust
Reading the body’s hidden
signs to restore its
balance and strength.
signs to restore its
balance and strength.
A glass clinks. In the other room, a laugh breaks the silence, and voices mingle in the warm light of a kitchen.
It’s one of those simple evenings, when time slows down and people come together — each with their own story, their own way of being present.
Sounds that tell the story of life as it flows — day after day, inside and outside homes, hospitals, and laboratories. There are those who study, those who heal, those who give, and those who live with illness every day.
Different roles, different lives — yet together, they find a shared meaning: that of a community that recognizes, listens to, and supports one another.
“Home with You” is this shared space, where science meets humanity and fragility turns into connection.
An invitation to stay close, even when worlds seem far apart.
A glass clinks. In the other room, a laugh breaks the silence, and voices mingle in the warm light of a kitchen.
It’s one of those simple evenings, when time slows down and people come together — each with their own story, their own way of being present.
Sounds that tell the story of life as it flows — day after day, inside and outside homes, hospitals, and laboratories. There are those who study, those who heal, those who give, and those who live with illness every day.
Different roles, different lives — yet together, they find a shared meaning: that of a community that recognizes, listens to, and supports one another.
“Home with You” is this shared space, where science meets humanity and fragility turns into connection.
An invitation to stay close, even when worlds seem far apart.
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With the unconditional support of
